“A healthy population with a sound health care system practicing healthy life style, in partnership with private sector including civil society, which is effective, efficient, and responsive to the health and needs of low socio-economic groups especially women in the reproductive age"
Punjab Thalassaemia Prevention Programme (PTPP) is an initiative of the Government of Punjab. It aims for a thalassaemia free Pakistan.
The project has been conceived as part of overall preventive strategy of the Government in the health sector. Beta-thalassaemia is one of the most common genetically determined hematological disorders in the country. The carrier prevalence rate for Beta-thalassaemia is 5.4% of the total population. The cultural tradition of consanguineous marriages in Pakistan has resulted in the increase in number of thalssaemia affected children, making it a significant public health problem. Since there is no effective treatment available for this disorder, the only hope lies in adopting a preventive program on the lines pursued by countries like Cyprus and Iran, which has resulted either in complete control of thalassaemia major or significant reduction in the prevalence of thalassaemia major in these countries. One of the primary reasons for prevention is the well being of existing thalassaemia major patients.
Project Director Associate Prof. Dr. Shabnum Bashir is leading a team of dynamic individuals towards the fulfillment of the goals and objectives of the project.
The Program strives to focus on the following core functions:
- Awareness about Thalassaemia
- Screening of carriers (extended family screening)
- Pre-marital screening for the general public
- Genetic counseling
- Pre-natal diagnosis
The major objectives are to reduce:
- Birth of new B-Thalassaemia major children in Punjab
- Burden on blood transfusion services
- Burden of blood transfusion transmitted diseases like Hepatitis B, Hepatitis C and HIV/AIDS in the population
- Socio-economic burden on the society and state caused due to Thalassaemia sufferers
- Burden of very sick patients on the infrastructure and human resource available in hospitals
- The ordeal of parents who lose their children due to this disorder